When Hope Loves Company

Leadership and learning are indispensable to each other. John F. Kennedy

When it comes to caregivers, we often think about caregiving for a spouse, partner, parent or grandparent. But what if you happen to be a kid who is caring for a parent with ALS (Lou Gehrig’s disease)?

Through the loss of her husband Kevin to ALS, Jodi O’Donnell-Ames created Hope Loves Company where kids and families dealing with ALS can find strength, comfort and compassion.

Hope Loves Company (HLC) is the only non-profit in the U.S. with the mission of providing educational and emotional support to children and young adults who had or have a loved one battling Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s disease.

Listen in and learn about Hope Love’s Company’s camps for kids, where kids can go and just be kids and “not have to explain ALS to anyone.”

Like many caregivers who turn their caregiving experience in to advocacy,  Jodi O’Donnell-Ames has a beautiful mission to ensure families and kids receive the hope, love and encouragement they need while in the midst of ALS.  Jodi O’Donnell-Ames is someone who is  creating Healing Ties all around us!

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  1. Abby Kass on December 17, 2016 at 5:15 pm

    So happy to know about this organization. I cannot imagine what it is like for a young child to deal with a parent with ALS and I’ve thought about that a lot. It was difficult enough for me, as an adult, to watch my husband. I will definitely look into Hope Loves Company. Thanks for posting this!

  2. sologivingcare on December 18, 2016 at 12:49 pm

    This is an amazing organization. Thank you for sharing! You are wonderful host!

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