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Rare Patient Voice

Creating A Global Network of Care


Rare Patient Voice


You have a voice that deserves to be heard!

Are you a patient or caregiver with something to say?
Make your voice heard, too, by participating in paid surveys, interviews and online communities! Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!

Rare Patient Voice provides patients and caregivers with the chance to voice their opinions!

Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.

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Check out the top ways this member helps individuals and families with care challenges.

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Sign Up!

Provide your input to improve products and services.
Help companies and researchers focus more on your disease.
Earn rewards for participating in interviews and surveys.
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Weekly Warrior Blog

Check out their amazing blog for patients that highlights patients and caregivers dealing with rare diseases.
These WARRIORS will show you that YOU are not alone!
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Each month, Rare Patient Voice shares an update about what's going on, including study results, books they're reading, partner highlights and upcoming study opportunities.

Rare Patient Voice is a WCN-Fluencer!

Wes Michael founded Rare Patient Voice in 2013 to allow patients and family caregivers to voice their opinions by participating in the research. Rare Patient Voice has now conducted thousands of studies and rewarded patients and caregivers with over $10 million for their participation. Many have been recruited in person by Wes and his team at in-person patient events and through a referral program with patient advocacy and support groups. Rare Patient Voice now covers non-rare as well as rare diseases and conditions and has grown from the United States to Canada, the United Kingdom, France, Germany, Italy, Spain, Australia, and New Zealand.

Visit their website

Share YOUR voice now!

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